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Airing Pain 42: Endometriosis and Support Groups

Learn­ing to man­age endometrio­sis and how sup­port groups can help

This pro­gramme was fund­ed by the Big Lot­tery Fund’s Awards For All pro­gramme in North­ern Ireland.

Paul Evans vis­its an endometrio­sis sup­port group in Belfast, and inter­views founder Anna Jamin­son and guest speak­er gynae­col­o­gist Dr David Hunter.

Dr Hunter dis­cuss­es the research about how endometrio­sis devel­ops and peo­ple liv­ing with the con­di­tion describe their expe­ri­ence in depth, includ­ing the impact upon per­son­al rela­tion­ships with fam­i­ly and friends. Mem­bers of the sup­port group talk of their immense relief at find­ing peo­ple with sim­i­lar sto­ries to share.

We hear about the dif­fi­cul­ties in diag­nos­ing endometrio­sis – often mis­tak­en for oth­er con­di­tions such as Irri­ta­ble Bow­el Syn­drome – but also about some recent improve­ments to its diag­no­sis and man­age­ment and the cru­cial role of sym­pa­thet­ic health­care professionals.

We also learn more about sur­gi­cal treat­ments and their like­ly prog­noses, includ­ing hys­terec­to­my, and we hear about the phys­i­cal, psy­cho­log­i­cal and emo­tion­al impact of such surgery.

Issues cov­ered in this pro­gramme include: Endometrio­sis, peer sup­port, sup­port groups, fam­i­ly, friends, rela­tion­ships, hys­terec­to­my, women’s pain, pelvic pain, vagi­na, bow­els, ade­no­myosis, uterus, womb, nau­sea, vom­it­ing, sneez­ing, cough­ing, diaphragm, peri­ods, men­stru­a­tion and IBS.


Con­trib­u­tors:

  • Dr David Hunter, gynaecologist
  • Anna Jamin­son, founder of Belfast endometrio­sis sup­port group
  • Lin­da Har­ris, group member
  • Nuala Camp­bell, group member
  • Robin Atchi­son, group member
  • Louise, group member.

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