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2014 Achievements


Air­ing Pain radio programme

This ever-pop­u­lar pro­gramme con­tin­ues our col­lab­o­ra­tion with Sony award-win­ning broad­cast­er Paul Evans and inter­net dis­abil­i­ty radio sta­tion, Able Radio. There are now over 65 inno­v­a­tive half-hour pod­casts on our web­site, inform­ing and sup­port­ing the pain com­mu­ni­ty. In 2014 we broad­cast 10 new pro­grammes and inde­pen­dent­ly mon­i­tored lis­ten­er fig­ures show lis­ten­er num­bers for the year of 137,000.  Top­ics have ranged from young peo­ple liv­ing in fam­i­lies with pain, the Pain Toolk­it to EFIC’s  con­fer­ence on the soci­etal impact of pain. An eval­u­a­tion of Air­ing Pain showed it to be well received by lis­ten­ers , with 80% say­ing they were helped by lis­ten­ing and over 90% say­ing they would rec­om­mend it to others.

Pain Mat­ters magazine

A recent eval­u­a­tion of our quar­ter­ly Pain Mat­ters has shown that it informs and empow­ers read­ers by rais­ing aware­ness, reduc­ing feel­ings of iso­la­tion and boost­ing self-man­age­ment skills. It is avail­able in print and elec­tron­ic for­mat. Dur­ing 2014, 10,500 copies of Pain Matter’s four edi­tions were distributed.


In 2014 we have pub­lished a new leaflet on Man­ag­ing Med­ica­tions and a book­let for young car­ers (see below).


We have planned and com­plet­ed the first year of a 2‑year research project inves­ti­gat­ing the bar­ri­ers in pri­ma­ry care set­tings that hin­der peo­ple in learn­ing to self-man­age their pain.  We have pre­sent­ed the results of the 1st year’s research at the March 2015 SPaRC con­fer­ence in Dundee and on our web­site. Our poster has been accept­ed for the 2015 Annu­al Sci­en­tif­ic Meet­ing of the British Pain Soci­ety and they will pub­lish an arti­cle in Pain News.

Young car­ers

In 2014 we under­took a project to sup­port young adult car­ers sup­port­ed by the City of Edin­burgh Coun­cil and NHS Loth­i­an. We pro­duced two radio shows, a CD/booklet pack­age Pain: The Unwant­ed Guest and we cre­at­ed an online forum ded­i­cat­ed to young carers.


We are devel­op­ing a unique Helpline Pain Train­ing to ensure that helpline vol­un­teers have a thor­ough under­stand­ing of chron­ic pain and its man­age­ment as well as call han­dling and helpline skills. We have an expert advi­so­ry board to steer the project, chaired by Dr Meherzin Das, Clin­i­cal Lead at Dorset Com­mu­ni­ty Pain Man­age­ment Ser­vice. So far, 30 vol­un­teers have been enrolled in the train­ing pilot. Their feed­back will be used to improve the pro­gramme in the future.

Demand on the helpline ser­vice con­tin­ues to grow, and near­ly 2,000 mem­bers of the pain com­mu­ni­ty con­tact­ed us through this ser­vice in the past year.

Walk­ing for Health

In col­lab­o­ra­tion with the Health and Social Care Alliance and Glasgow’s Pain Man­age­ment Pro­gramme, we pilot­ed a Walk­ing for Health project, with walks espe­cial­ly adapt­ed for the Chron­ic Pain Community.

Qual­i­ty monitoring

We have Infor­ma­tion Stan­dard accred­i­ta­tion. This pres­ti­gious award ensures that our infor­ma­tion meets the qual­i­ty stan­dard required by the NHS and the Map of Med­i­cine. We are review­ing process­es and devel­op­ing our helpline train­ing in line the require­ments of the Helplines Stan­dard, with a view to work­ing towards accreditation.

Exter­nal affairs

Pain Con­cern mem­bers sit on var­i­ous top-lev­el pol­i­cy groups: The Inter­na­tion­al Asso­ci­a­tion for the Study of Pain’s Expert Patient Advi­so­ry Group, NHS England’s Clin­i­cal Ref­er­ence Group for Spe­cialised Pain Ser­vices, the Scot­tish Government’s Chron­ic Pain Steer­ing Group, RCGP’s Pain Group, the Chron­ic Pain Pol­i­cy Coali­tion, Pain UK and Nation­al Voic­es Long Term Con­di­tions Group.

Mar­ket­ing and Publicity

It is impor­tant that we reach as many peo­ple as pos­si­ble. Our mar­ket­ing team has built sol­id com­mu­ni­ca­tion chan­nels with 30 pain clin­ics across UK. In addi­tion to hold­ing and dis­trib­ut­ing our mate­ri­als, sev­er­al clin­ics in Scot­land have also organ­ised reg­u­lar infor­ma­tion ses­sions, where our vol­un­teers are on site to meet with patients and health­care pro­fes­sion­als to pro­vide infor­ma­tion and signposting.

We had exhi­bi­tion stands at the British Pain Society’s 2014 Annu­al Sci­en­tif­ic Meet­ing in Bournemouth and at the World Con­gress of Pain in Buenos Aires, Argenti­na.  We also attend­ed many local self-man­age­ment days through­out Scotland.


The Char­tered Soci­ety of Phys­io­ther­a­pists co-badged their Phys­io­ther­a­py Works chron­ic pain brief­ing, which goes to health­care pro­fes­sion­als. NHS Grampian and NHS Greater Glas­gow and Clyde are pro­duc­ing joint­ly brand­ed edi­tions of A Guide to Man­ag­ing Pain to be dis­trib­uted in their Health-point facil­i­ties. We are col­lab­o­rat­ing with NICE on pub­lish­ing infor­ma­tion on neu­ro­path­ic pain. We have pro­duced a sec­tion of a chap­ter for the Roy­al Col­lege of Anaes­thetists Fac­ul­ty of Pain Med­i­cine pub­li­ca­tion ‘Stan­dards for the Pro­vi­sion of Pain Ser­vices’. The sec­tion is Chap­ter 5 – Patient Path­way: Com­mu­ni­ca­tion with patients.



Demand for our sup­port con­tin­ues to increase so to ensure that we can meet future demands; we are reg­is­ter­ing as a com­pa­ny lim­it­ed by guarantee.

Pain Train­ing

We have been col­lab­o­rat­ing with NHS Greater Glas­gow and Clyde to set up and deliv­er a pain train­ing, devel­oped by the NHS, in a pri­ma­ry care set­ting. Work is almost com­plete. The pain train­ing will allow us to reach peo­ple ear­li­er in their diag­no­sis and ensure that they have the basic infor­ma­tion they need to under­stand and man­age their condition.

Media Projects

We have been award­ed a grant to pro­duce a radio pro­gramme and an arti­cle on Female Gen­i­tal Muti­la­tion. The focus will be on its long-term impact and how it often results in long term pain. And – linked to our research project — we will pro­duce a radio pro­gramme and a video aimed at empow­er­ing peo­ple to improve their self-man­age­ment skills and, impor­tant­ly, to improve com­mu­ni­ca­tion with their health­care professionals.