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#PainPetition aims to improve pain management services in the UK and we need your signature

photo of the petition on pain leaflet
#PainPe­ti­tion cam­paign leaflet 

I am nev­er asked how my pain is by my GP even if I go about my pain. When I see my sur­geon it is usu­al­ly because I am suf­fer­ing and he asks me where the pain is and what type of pain but there is no pain mea­sure­ment and he rarely touch­es me which I find surprising!

Chron­ic pain patient

Is this some­thing you expe­ri­ence when you vis­it your doctor?

How would you feel if next time you go to see your first-con­tact doc­tor they ask whether you are in pain and what effect this has on your dai­ly life? Would you feel more assured that your pain is man­aged and treat­ed more effec­tive­ly if your pain was mea­sured reg­u­lar­ly and the results record­ed and includ­ed in a pain man­age­ment plan? Do you feel ask­ing about pain should be as rou­tine as tak­ing a tem­per­a­ture or blood pressure?

Jean Gaf­fin, Pain UK’s Pain Cham­pi­on for 2013, thinks each of these ques­tions should be answered YES. Jean has start­ed an online peti­tion call­ing for the UK Depart­ment of Health, along with organ­i­sa­tions respon­si­ble for set­ting stan­dards of care, to improve the way peo­ple in pain are treated.

You can sign the e‑petition by vis­it­ing the fol­low­ing link:

Fol­low up the cam­paign on Twit­ter using hash­tag #painpe­ti­tion

Jean said: “Many peo­ple liv­ing with chron­ic pain suf­fer in silence – even when talk­ing to their doc­tor or oth­er health­care pro­fes­sion­al. Peo­ple in pain may find it dif­fi­cult to talk about it when they are with a health or care pro­fes­sion­al.  Patients should be asked whether they are in pain, and how it affects their dai­ly liv­ing. Pain should be mea­sured and the results record­ed and includ­ed in a pain man­age­ment plan which would include self-management.

If ask­ing about pain was as rou­tine as tak­ing a tem­per­a­ture or blood pres­sure peo­ple liv­ing with chron­ic pain could be helped rou­tine­ly and reg­u­lar­ly to man­age their pain and have it treat­ed effec­tive­ly instead of suf­fer­ing in silence.”

Pain should be mea­sured reg­u­lar­ly. In asth­ma patients the res­pi­ra­to­ry flow is mea­sured and in dia­betes, blood sug­ars are mea­sured, so why is noth­ing mea­sured for pain patients?

Chron­ic pain patient

The peti­tion needs 100,000 sig­na­tures to be eli­gi­ble for a debate in the House of Com­mons and 10,000 sig­na­tures before it will prompt a response from the Gov­ern­ment. So far, 2,130 peo­ple have added their sup­port , how­ev­er we are aim­ing for as many as pos­si­ble. The peti­tion clos­es  in December.

Jean added: “There are over 14 mil­lion of peo­ple in Eng­land who live with chron­ic pain, and if each of them signed the peti­tion the UK gov­ern­ment would receive a very clear sig­nal from the pain com­mu­ni­ty. We’ve only got 4 months to move it clos­er to the required num­ber of sig­na­tures. We are there­fore ask­ing you: please join us in sup­port­ing this impor­tant cause, sign the peti­tion and pass on the word. Let’s take care of the UK pain ser­vices and shape the way we want to have chron­ic pain treated.”


Michael Snaith

I am ambiva­lent about this cam­paign: pain is a symp­tom which is inter­min­gled with emo­tion. There are many under­ly­ing caus­es and con­tribut­ing fac­tors. It is not anal­o­gous to dia­betes and asth­ma, nor is it linked direct­ly to out­come as is hyper­ten­sion. State­ments by indi­vid­ual peo­ple who con­sid­er that they have not been dealt with well by their GPs are not them­selves a rea­son to start a peti­tion, with­out know­ing what it is that needs to be changed or have more fund­ing. Pain clin­ics have been in exis­tence for a gen­er­a­tion or more. Whether or not more are need­ed to ful­fill unmet need itself mer­its prop­er research. Peo­ple whose pain has been well man­aged will not be con­trib­u­tors to this cam­paign, so it is inher­ent­ly biased.

In reply to Michael Snaith , yes, ’ sad­ly’ to a degree, I agree with you, but I feel there are areas where look­ing at pain must be seen dif­firent­ly and just because we can’t put our fin­ger on the cause of the pain, must not mean that we give in to not look­ing again at the patient, but maybe with anoth­er fame of mind, or as I believe there may be a way that the body, (brain or mind) is try­ing to com­mu­ni­cate and tell the imme­di­ate mind as the sub­con­scious has not been heard or under­stood at all ‚or as in many cas­es the will to try to under­stand is lack­ing because there are no kudos in pos­si­bly study­ing patients who may be dif­fi­cult, because com­mu­ni­ca­tion is con­fus­ing for them ‚or that they are mis­un­der­stand­ing what their body is say­ing to them, or it may be that lis­ten­ing to their body prop­er’ is alien to them.
I bet if there was a study, where in cas­es where a Doc­tor has said to a patient ‚if only you had came to me ear­li­er, and said patient dies, well what if that patient mis­read or did not lis­ten prop­er to their body’s voice.
I know it’s not some­thing that eas­i­ly springs to mind for Doc­tors as they are led to believe that pain and the cause will be so obvi­ous . But what if there are sig­nals from the sub­con­scious that we fail to under­stand or are fail­ing to hear, or that some Doc­tors laugh at the possibility.

What if the sub­con­scious, if on being not lis­tened to, man­i­fest’s itself in pain, or ’ well I hope you get the drift, For there must be an area, sure­ly’ where pain man­i­fest’s itself to com­mu­ni­cate some­thing, in that a seri­ous ill­ness is picked up by the brain, how then may it tell the con­scious .mind.
Yes I know it may be Balder­dash, But How can we tell either way, unless we open our minds to a pos­si­bil­i­ty of the mind try­ing to com­mu­ni­cate, if it has not been heard in it’s usu­al fashion.

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