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Statement on draft NICE guidelines, published 3 August 2020


I have Fibromyal­gia and am now on 50mg of Mor­phine a day. I man­aged to reduce it 2 and half years ago from 160mg . I also man­aged to stop Pre Gabilin. BUT I am very, very anx­ious about these new Guide­lines from Nice. I under­stand Opi­oids are addic­tive and alter­na­tives should be tried first and Opi­oids used as a last resort. But I could­nt get out of bed and func­tion with­out my Mor­phine. I’ve reduced mine by tak­ing legal CBD oil sold as a food sup­ple­ment. If the govt were to make CBD oil avail­able to us No doubt \i could reduce my Mor­phine more. I am hav­ing pan­ic attacks wor­ry­ing about it. I also have M.E and the worst things for M.E are CBT and exercise.

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